Monday, April 15, 2013

"I love you but snap out of it!"


Nothing says "I love you but snap out of it!" like a pair of pink atomic midcentury lamps! My little sister stopped by today with these lamps that are so very much me! She said I needed something to cheer me up and get me focused on something else, i.e.: stop moping around. Thanks Jess! I needed that! I know I have totally been mopey and self loathing. It didn't help that I was super sick forever with the worst ear infection known to man! But really I'm done with the self pity (for a while) I promise:) Time to be pro active! Time to find a some lamp shades for these babies! 

I have started Sadie on a Mito Cocktail and we have decided that she will have to do another muscle biopsy in the summer to get clearer results. A muscle biopsy really isn't the hugest deal in the world but Sadie reacts so badly to the anesthesia. Every time she has to go under it sets her mobility back a month or so but this is the only way to get clear results on the type of mitochondria disorder she has. After our unsatisfactory appointment with the specialist, Sadie's neurologist got us in right away to discuss the mess up with the previous biopsy and helped us move forward. Thus our next step of the mito cocktail and plans of forgoing easier testing that won't give us clear results and going straight to the muscle biopsy again.  It won't be fun but getting answers will help us know what direction to go with treatment.

 I have always said that I will do anything to find answers and make sure I'm doing all I can for Sadie. I am starting to feel like I may not get very clear answers and I need to be okay with that. It's becoming hard to balance treatments, quality of life and then feeling at peace with my decisions.  I wish I could say this muscle biopsy will be our last hurrah and if we don't get answers well then "it is what it is" but..... I'm not so sure 'm there yet. 




13 comments:

  1. This piece of writing will assist the internet visitors for creating new webpage or
    even a blog from start to end.

    my weblog; Read Full Report

    ReplyDelete
  2. Hello everyone, it's my first visit at this site, and piece of writing is in fact fruitful in support of me, keep up posting such articles.

    Here is my webpage: black lab golden retriever

    ReplyDelete
  3. I have learn several good stuff here. Certainly worth bookmarking for revisiting.
    I wonder how much effort you set to make such a magnificent informative site.


    Here is my web site important site

    ReplyDelete
  4. May I just say what a relief to discover somebody that truly knows
    what they're discussing on the web. You actually understand how to bring an issue to light and make it important. More and more people should Look At This and understand this side of the story. It's surprising you aren't more popular given that you surely possess the gift.

    ReplyDelete
  5. I every time used to study article in news papers but now as I am a user
    of web thus from now I am using net for articles, thanks to web.


    Also visit my blog :: Recommended Reading

    ReplyDelete
  6. Hi there to every one, the contents existing at this site are truly awesome for people experience, well, keep up the nice
    work fellows.

    My blog post golden retriever lab mix puppy

    ReplyDelete
  7. Excellent blog you've got here.. It's hard to find high-quality writing like yours these days.
    I seriously appreciate people like you! Take care!!


    my web site - quality teacup golden retriever material

    ReplyDelete
  8. Thanks for sharing your thoughts on golden retriever character.
    Regards

    My web-site: awesome mini golden retreiver facts

    ReplyDelete
  9. I savor, result in I found just what I was looking for.

    You have ended my four day lengthy hunt! God Bless you man.
    Have a great day. Bye

    Here is my blog post ... click to read more

    ReplyDelete
  10. Hello there, just became alert to your blog through Google, and found that
    it's truly informative. I am going to watch out for brussels. I will be grateful if you continue this in future. Numerous people will be benefited from your writing. Cheers!

    My web blog: Check This Out

    ReplyDelete
  11. My brother recommended I might like this blog. He was
    entirely right. This post actually made my day. You can not imagine just how much time I had spent
    for this information! Thanks!

    My web-site :: outstanding Golden Retrievers puppy content

    ReplyDelete
  12. I got this web site from my pal who told me about this web site and now this time I am browsing this web site and reading very informative content at this time.


    my web page golden labrador puppies

    ReplyDelete
  13. Hi there! Do you know if they make any plugins to protect against hackers?
    I'm kinda paranoid about losing everything I've worked hard on.
    Any tips?

    My web-site; pilates classes - www.iamsport.org

    ReplyDelete

Your comments make my blog! Thank you!